Sleep quality of mother-caregivers of Duchenne muscular dystrophy patients

Sleep quality of mother-caregivers of Duchenne muscular dystrophy patients

Author Nozoe, Karen T. Autor UNIFESP Google Scholar
Polesel, Daniel N. Autor UNIFESP Google Scholar
Moreira, Gustavo A. Autor UNIFESP Google Scholar
Pires, Gabriel N. Autor UNIFESP Google Scholar
Akamine, Ricardo T. Autor UNIFESP Google Scholar
Tufik, Sergio Autor UNIFESP Google Scholar
Andersen, Monica L. Autor UNIFESP Google Scholar
Abstract Background Sleep disturbance is a common problem for caregivers. In general, patients with Duchenne muscular dystrophy (DMD) use noninvasive ventilation to maintain quality of life and improve survival. Objective The aim of this study was to evaluate the sleep quality of caregiver-mothers of sons with DMD and factors that are associated with their sleep quality. Methods We evaluated 32 caregiver-mothers of sons with DMD and 32 mothers of sons without any neuromuscular or chronic disease (control-CTRL group). The evaluation of quality of sleep was made using the Pittsburgh Sleep Quality Index (PSQI). Results Caregiver-mothers had poor sleep quality, specifically longer sleep latency and reduced sleep efficiency. The impaired sleep quality of the caregiver-mothers was associated with the length of time of noninvasive ventilation used by their sons. Conclusions Our results suggest that caregiver-mothers of sons with DMD have poor quality of sleep, and the length of use of noninvasive ventilation of their sons is associated with better sleep of caregiver-mothers.
Keywords Sleep
Caregiver
Bi-level positive airway pressure device (Bi-PAP)
Duchenne muscular dystrophy
Mothers
Noninvasive ventilation
xmlui.dri2xhtml.METS-1.0.item-coverage Heidelberg
Language English
Sponsor Associacao Fundo de Incentivo a Pesquisa (AFIP)
CAPES
CNPq
Sao Paulo Research Foundation (FAPESP)
Grant number FAPESP: 2014/08067-0
Date 2016
Published in Sleep And Breathing. Heidelberg, v. 20, n. 1, p. 129-134, 2016.
ISSN 1520-9512 (Sherpa/Romeo, impact factor)
Publisher Springer Heidelberg
Extent 129-134
Origin http://dx.doi.org/10.1007/s11325-015-1196-9
Access rights Open access Open Access
Type Article
Web of Science ID WOS:000372160800016
URI https://repositorio.unifesp.br/handle/11600/57893

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