Quality of life in adults with sickle cell disease: an integrative review of the literature

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dc.contributor.author Felix de Freitas, Sandra Luzinete
dc.contributor.author Ivo, Maria Lucia
dc.contributor.author Figueiredo, Maria Stella [UNIFESP]
dc.contributor.author de Souza Gerk, Maria Auxiliadora
dc.contributor.author Nunes, Cristina Brandt
dc.contributor.author Monteiro, Fernando de Freitas
dc.date.accessioned 2020-07-02T18:51:56Z
dc.date.available 2020-07-02T18:51:56Z
dc.date.issued 2018
dc.identifier http://dx.doi.org/10.1590/0034-7167-2016-0409
dc.identifier.citation Revista Brasileira De Enfermagem. Brasilia Df, v. 71, n. 1, p. 195-205, 2018.
dc.identifier.issn 0034-7167
dc.identifier.uri https://repositorio.unifesp.br/handle/11600/53775
dc.description.abstract Objective: To identify the available evidence in the literature on health-related quality of life in adults with sickle cell disease. Method: integrative review of MEDLINE, CUMED, LILACS and SciELO databases, from articles developed in this area, published between 2005 and 2015, in English, Portuguese or Spanish. Results: 22 articles were included, six scales were used to evaluate health-related quality of life scores: three generic and three specific. No specific scale for adults with sickle cell disease has been adapted to Brazilian Portuguese so far. Patients affected by frequent painful crises, with low adherence to treatment, had a compromised quality of life. Conclusion: Selected studies have shown that patients with sickle cell disease have worse scores than the general population. These indicators should be instrumental to the nurse in the proposal of interventions and strategies of assistance and socio-educational, with a view to improving the quality of life of this clientele. en
dc.description.sponsorship Foundation for Support to the Development of Education, Science and Technology of the State of Mato Grosso do Sul - FUNDECT
dc.description.sponsorship Coordination for the Improvement of Higher Education Personnel - CAPES
dc.format.extent 195-205
dc.language.iso eng
dc.publisher Assoc Brasileira Enfermagem
dc.relation.ispartof Revista Brasileira De Enfermagem
dc.rights Acesso aberto
dc.subject Quality of Life en
dc.subject Sickle Hemoglobin en
dc.subject Inquiries and Questionnaires en
dc.subject Nursing en
dc.subject Based on Evidence en
dc.title Quality of life in adults with sickle cell disease: an integrative review of the literature en
dc.type Artigo
dc.description.affiliation Univ Fed Mato Grosso do Sul, Postgrad Program Hlth & Dev Cent West Reg, Campo Grande, MS, Brazil
dc.description.affiliation Univ Fed Sao Paulo, Dept Clin & Expt Oncol, Sao Paulo, Brazil
dc.description.affiliation Univ Fed Mato Grosso do Sul, Ctr Biol & Hlth Sci, Undergrad Program Nursing, Campo Grande, MS, Brazil
dc.description.affiliation Assoc Beneficente Campo Grande, Med Residency Psychiat, Campo Grande, MS, Brazil
dc.description.affiliationUnifesp Univ Fed Sao Paulo, Dept Clin & Expt Oncol, Sao Paulo, Brazil
dc.identifier.file WOS000429060300027.pdf
dc.identifier.doi 10.1590/0034-7167-2016-0409
dc.description.source Web of Science
dc.identifier.wos WOS:000429060300027
dc.coverage Brasilia Df
dc.citation.volume 71
dc.citation.issue 1



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