Quality of life in adults with sickle cell disease: an integrative review of the literature

Quality of life in adults with sickle cell disease: an integrative review of the literature

Author Felix de Freitas, Sandra Luzinete Google Scholar
Ivo, Maria Lucia Google Scholar
Figueiredo, Maria Stella Autor UNIFESP Google Scholar
de Souza Gerk, Maria Auxiliadora Google Scholar
Nunes, Cristina Brandt Google Scholar
Monteiro, Fernando de Freitas Google Scholar
Abstract Objective: To identify the available evidence in the literature on health-related quality of life in adults with sickle cell disease. Method: integrative review of MEDLINE, CUMED, LILACS and SciELO databases, from articles developed in this area, published between 2005 and 2015, in English, Portuguese or Spanish. Results: 22 articles were included, six scales were used to evaluate health-related quality of life scores: three generic and three specific. No specific scale for adults with sickle cell disease has been adapted to Brazilian Portuguese so far. Patients affected by frequent painful crises, with low adherence to treatment, had a compromised quality of life. Conclusion: Selected studies have shown that patients with sickle cell disease have worse scores than the general population. These indicators should be instrumental to the nurse in the proposal of interventions and strategies of assistance and socio-educational, with a view to improving the quality of life of this clientele.
Keywords Quality of Life
Sickle Hemoglobin
Inquiries and Questionnaires
Nursing
Based on Evidence
xmlui.dri2xhtml.METS-1.0.item-coverage Brasilia Df
Language English
Sponsor Foundation for Support to the Development of Education, Science and Technology of the State of Mato Grosso do Sul - FUNDECT
Coordination for the Improvement of Higher Education Personnel - CAPES
Date 2018
Published in Revista Brasileira De Enfermagem. Brasilia Df, v. 71, n. 1, p. 195-205, 2018.
ISSN 0034-7167 (Sherpa/Romeo, impact factor)
Publisher Assoc Brasileira Enfermagem
Extent 195-205
Origin http://dx.doi.org/10.1590/0034-7167-2016-0409
Access rights Open access Open Access
Type Article
Web of Science ID WOS:000429060300027
URI https://repositorio.unifesp.br/handle/11600/53775

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